SENIOR SIGNALS: The overwhelming burden of early-onset Alzheimer's

Published on Sunday, 16 January 2022 18:53
Written by DANIEL O. TULLY


Last week the Golf Channel’s veteran journalist, Tim Rosaforte, died of Alzheimer’s disease at the age of 66. If you are not a golf fan you may not recognize Mr. Rosaforte’s name. However, his age shocks many people seeing he passed from complications of Alzheimer’s at 66. Alzheimer’s disease at a younger age is called early-onset Alzheimer’s, if it affects a person under 65 years of age. Those diagnosed with early-onset Alzheimer’s have unique challenges as it relates to family, work and future care. In many early-onset cases individuals may not have yet retired and lack the resources to pay for long-term care.

Alzheimer’s and other types of cognitive impairments are the leading cause of needing long-term care. The burden on the family when someone needs long-term care can be enormous. But when the need for care is caused by Alzheimer’s, the burden can seem both overwhelming and never-ending. The average duration from the date of diagnosis to date of death is over nine years. Patients with Alzheimer’s eventually reach the point where round-the-clock care is needed. Even with a loving, devoted family, it is often impossible to keep a loved one home as Alzheimer’s ravages their ability to be home by themselves safely. That is why many people with the disease end up in nursing homes. Nursing homes are uniquely able to provide comprehensive, round-the-clock care that most families cannot provide.

If you or a loved one has been diagnosed with Alzheimer’s disease, it is important to start planning immediately. There are several essential documents to help you once you become incapacitated, but if you do not already have them in place, you need to act quickly after a diagnosis.

Having dementia does not mean an individual is not mentally competent to make planning decisions. The person signing documents must have ‚Äútestamentary capacity,‚ÄĚ which means he or she must understand the implications of what is being signed. Simply having a form of mental illness or disease does not mean you automatically lack the required mental capacity. As long as you have periods of lucidity, you may still be competent to sign planning documents.

The following are some of the essential documents for someone diagnosed with dementia:

ÔĀģ‚ÄČPower of Attorney. A power of attorney is the most important estate planning document for someone who has been diagnosed with Alzheimer‚Äôs disease or some other form of dementia. A power of attorney allows you to appoint someone to make decisions on your behalf once you become incapacitated.

ÔĀģ‚ÄČHealth Care Representative. A health care representative, like a power of attorney, allows you to appoint someone else to act as your agent for medical decisions. It will ensure that your medical treatment instructions are carried out.

ÔĀģ‚ÄČLiving Will. Living Wills explain what type of care you would like if you were unable to direct your own care.

ÔĀģ‚ÄČWill and other Estate Planning Documents. In addition to making sure you have people to act for you and your wishes are clear, you should make sure your estate plan is up to date, or if you do not have an estate plan, you should draw one up.

Few seniors have the ability to afford the cost of a nursing home. In Connecticut, the average cost of a nursing home is about $200,000 a year. Those who had the foresight to purchase long-term care insurance are in good shape, but only seven percent of seniors have such insurance. Others must pay out of pocket until they qualify for Medicaid, the joint federal and state health care program for the poor. Medicaid now covers more than half of the cost of nursing home care in this country. Its rules permit the protection of significant assets for the nursing home resident, for his or her spouse, and for other family members. However, the rules are complicated, ever-changing, and full of traps for the unwary. An experienced elder law attorney is uniquely qualified to guide the senior and his or her family through the long-term care planning process.

CBS legendary golf announcer Jim Nantz spoke of Tim Rosaforte‚Äôs courageous battle with Alzheimer‚Äôs. Nantz, whose father died of Alzheimer‚Äôs, has set up the Nantz National Alzheimer‚Äôs Center in Houston and personally knows the heartache of this insidious disease. Nantz noted, ‚ÄúIt‚Äôs the untold story of Alzheimer‚Äôs. There are more people whose lives are changed almost overnight than just the one who is suffering from the disease.‚ÄĚ

Attorney Daniel O. Tully is a partner in the law firm of Kilbourne & Tully, P.C., members of the National Academy of Elder Law Attorneys Inc., with offices at 120 Laurel St., Bristol. (860) 5831341 or ktelderlaw. com.

Posted in Newington Town Crier, Newington News on Sunday, 16 January 2022 18:53. Updated: Sunday, 16 January 2022 18:56.